I am a life learning Mama and this page is where I like to share things that resonate with me in some way along this wonderful life journey we are on ♥
Showing posts with label SLD. Show all posts
Showing posts with label SLD. Show all posts

Monday, 6 April 2015

I want to shout it from the rooftops! He found his way without school ❤️

Proud Mummy Moment! I just want to shout out about my son Samuel who has just phoned me with some wonderful news. Many of you know of him and his early struggles in school and that we ended up unschooling after a long and often hair raising journey to get there. He is now at 19 in his final year of his software engineering degree at the University of Queensland. As part of the work for one of his papers he has been going into industry to interview people and after one day he received a call from a company that said they had an internship going and they thought Samuel should apply if he was interested. He was not looking for work but the sound of it was something that really interested him. The date of application closure was the day they called him. He furiously filled the application and sent off his CV (which for someone with his executive function issues is huge to get himself into gear and organised to do this!) and was then called for an interview with 40 other applicants and he being the only homeschooler. He went for the interview and felt that it had gone well but was up against some other very talented young programmers. However, he got a call last week and was told that he was wanted for a second round of interviews. The interview happened on Tuesday and he was called last night offering him the internship!! Tears of joy from this proud Mama! He will be going in one day per week paid and taught all that they can teach him and then at the end of his degree has the offer of a full time position. My out of control (to others!) boy diagnosed with ADHD/ASD/ODD/Gifted and with learning difficulties (namely dyslexia and severe dysgraphia) who was suspended from every single school bar one (and he went to quite a few schools), who we were told needed serious psychiatric help by one school principal and who left the school system crushed, depressed and with little to no self esteem has just proved them all how wrong they were about him! I always knew that they were wrong but he didn't! He came home and was allowed to be the wonderful, smart human being that he is and always was. It was just that school didn't always see that and tried to "fix" him when he was never broken! To all those parents who worry about their children - please have faith. I know sometimes it is a huge leap of faith but Samuel was allowed to follow his passions and do things HIS way and I am so very proud of the young man he has become and his achievements today. He has proved to me that you don't need others to teach you, tell you what you need to or should be learning. Having a passion, interest or aptitude in something and being allowed to follow it really does work - well it has for my family anyway and I am sure it will for most heart emoticon

Saturday, 21 February 2015

Over prescribing medication to children



A little while back I posted an article on my Facebook page about the over prescribing of prescription medication for children. Not just any medication but anti-psychotic. I shared with a comment about how very sad I was to read the figures and how wrong I felt it was. 100,000 scripts for children alone in Australia seem astonishingly high and I question whether all children prescribed these meds actually need them. I have been in the ADHD/ASD/Gifted/Specific Learning Difficulty arena for over 20 years now and have done much reading and research around this topic. I was married to a man diagnosed with ADHD, I have a nearly 20 year old diagnosed with ADHD/ASD/Gifted and with specific learning differences, namely dysgraphia and dyslexia (a lot of unnecessary labels me thinks and one has to beg the question why?! - but hey that is whole other discussion!) I have also taught in schools where children have similar diagnosis (or not) but are medicated and I have formed some strong views on it. They are merely my views woven from the journey I have been on to find me where I am now with my thoughts on all this and that being that there are far too many children being prescribed strong medications, with little research into the long term effects on the developing brain and those said same medications often having some quite extreme side effects that I have heard about through friends and from my own observations whilst teaching.  I chose not to medicate my son after doing extensive research, soul searching and discussion with him over the years. I loved my son as he was. As a child he shone to me like a beam of light, always happy, fun loving and kind. What were his issues? He had bucket loads of energy (some like to say hyperactive), he did things his way, questioned authority when he did not see a reason for something and questioned most things in life and the universe from how milk got from a cow to how a wheel turned to how one might travel in time - insatiable and never ending his quest for knowledge. His brain was a dynamo, always exploring and enthusiastic about everything! Why would I mess with that? He was 3 or 4 when he was first diagnosed with ADHD.  He had stood out as being different from when he started at nursery when he was 2 and I as a single Mum went to University to study for my degree.  I was often called in for "chats" about my sunny boy. They did not always have the same upbeat view of my son that I had.  They found him hard work. So hey why not medicate him? The interview where this decision was made took about 1/2 hour where I had to fill some questionnaires, (as did the nursery he was in at the University I was studying at) and they had a chat with me. They diagnosed him with ADHD (after hearing that his Father was diagnosed with ADHD as a child and was on Ritalin until the age of 16). I accepted the diagnosis but I rejected the need for medication. It actually filled me with horror. Why would I give me beautiful perfect child an amphetamine (with similar effects on the brain as speed and cocaine?) He was 3!! The response to my decision from the psychiatrist was that what I was doing was "an indirect form of child abuse as I was not offering my son the window of opportunity to realise his full potential" Wow! What a burden to put on a Mother's shoulders and on my shoulders it fully sat as I had no support being a single Mum and little family support as my Mother had died the year before the birth of my son. There were no support networks like there are now.  No forums.  No Facebook.  Nothing.  I cried an ocean of tears and toiled with what they had told me but my instinct was to say no to drugs. So I did. We continued on enjoying our life but with many phone calls from nursery, child care or whoever was looking after Samuel for me - mostly telling me what he had done wrong and how they could no longer look after him. It was a very stressful time for me and I questioned my decision often but that deep instinctual protective maternal force kept me on the path I had chosen for us. I have never said no to medication as I know it can help some children immensely but I felt for us there were other things I wanted to try. I looked at his diet and eliminated all artificial additives, natural siliciates and basically did an elimination diet where you take the diet back to basics and slowly introduce foods back in to see if there are any side effects from those foods. Food definitely did affect him but it was not a miracle cure. I also took him to a naturopath and we also added some vitamins, omega 3, minerals and they too helped but again it was not a "cure". And I say "cure" because that was often the word used about my beautiful boy. I started to question this and ask what was it they wanted to cure?  An insatiable curiosity and need for answers, a busy body that needed to move to learn, a self-motivated investigator who did not want to sit and do what others expected of him but wanted to seek out his own interests (and yes this was evident from the get go - which I think is the same for all children but maybe those with these diagnosis are a little more extreme in their behaviours).  I loved being with Samuel and he lit up my world. The heavy load came from others views and expectations of him and I was unwilling to medicate to appease them.

I had other reservations for the use of medication. I had been married to a man who was diagnosed with ADHD. I had not even heard of this condition until I met him. He was exciting, vivacious, interesting, fun, kind and thoughtful and I loved him very much. However, amongst the good, there was a darker side. He had a problem with drugs. When we first met it was only marihuana but then things seemed to spiral and once he had moved to the UK from Australia (where we had me) his drug problem had grown to include heavy use of ecstasy, speed and cocaine (amongst other things that I dared not know). His life crumbled. We were very young and his problem was out of control. My beautiful Mum had been diagnosed with cancer and neither of us particularly coped with the stress from that. He became erratic and violent and we were known to the police and a number of restraining orders were put in place after I had been the victim of domestic violence on a number of occasions. Our lives were crazy and completely dysfunctional. I was mourning the death of my Mother and he was dealing with his unresolved childhood issues of being a kid that was totally misunderstood and self-medicating turning him into a danger to himself and us. This was a beautiful human being who I saw as being damaged by a system that deemed he did not "fit". He was punished for being himself. He was always in trouble in school and spent much of his time outside the principal's office. He was also medicated with Ritalin. He said he hated it. He felt a lack of control and he hated the way it made him feel. Those memories of what he had told me and the tears I had seen him cry propelled me even more to walk a different path with our son who had been given the same diagnosis as his Dad. I wanted to rewrite history, not repeat it and right a wrong for Samuel's Dad, even though he was no longer in our lives having moved away and us not seeing him ever again from when Samuel was about 3. This was so important to me. His story scared me. He scared me. My son's diagnosis scared me. I wanted a different story for Samuel, so I chose a different path and thus began my feelings about the use of medication.

I also met a couple of other Mums whose children had similar diagnosis and they trialed medication and it was not the magic cure that so many touted. They had no fewer problems than my son who was not taking it. I also in time met another child again with a similar diagnosis and he was on a cocktail of medications and he was actually doing no better but worse than my son. I saw medication as being something that promised you the world and let you down over and over again. I also started working at a school as a teacher aide, working with 5 year olds. I always remember one dark haired little boy with the palest skin and sad eyes. He had been put on Ritalin to help bring him out of himself and to focus. What do you want a boy of 5 to focus on? Sitting at the table struggling to read because he is not ready or letting him play and play all day until his cheeks become flushed with joy and his eyes light up? I would choose the later. He would cry to me that he did not want to go to the office at lunch time for his little white pill. He would cry to me that they made his head hurt. I so wanted to stop that for him. I wanted to scream at the school. I wanted to scream at his mother for listening to those Drs who no doubt made her feel as guilty as they had me by saying that if she did not give him those little pills she would be offering him no window of opportunity in his little 5 years of life! What had gone wrong with the world that we find ourselves in a place that we feel the need to give drugs meant for grown bodies and brains to babes with precious minds that are still forming? It was all so hard for me to understand but again cemented my feelings that giving Samuel no little white pills was the right choice for us. I did not want to see my boy clutch his head in pain or cry with a complete lack of control over this decision. The powerlessness of childhood is something I struggle with. That little boy had no power over his destiny and I felt powerless to help the little man in my care at school other than to hug him wipe his tears and hear his feelings, but I could help my own son and I would and I did – drug free.  I am not touting this as being the best way but it was the way for us and in the same way that others don’t like to be made to feel guilty for medicating their children I don’t want to be made to feel guilty for choosing not to.  My son is 19 now, in his final year of a software engineering degree, has a girlfriend, part-time job and is a happy human being who likes himself as he is.  If the powers that be had had their way he would have been medicated and I think that where he is now shows that it just wasn't necessary.  So yes, sorry to those who got angry with me for posting the article that stated those stats and had the need to justify why medication is the answer for their children but this story is my reasoning for my big questions on why so many children are being medicated and most often than not to stay in an education system that cannot cope with difference.  Something is very wrong in that for me but hey we are all entitled to our own opinions and for the story of success that I give here about my own son I know there are others that will show how medication was right for them.  Life is never black and white but many shades of grey and one person’s truth is not the same as another’s and that is ok but at least try to be open minded and just accept that every opinion is just someone's perspective and their truth and every bit as real as your own..