Proud Mummy Moment! I just want to shout out about my son Samuel who has just phoned me with some wonderful news. Many of you know of him and his early struggles in school and that we ended up unschooling after a long and often hair raising journey to get there. He is now at 19 in his final year of his software engineering degree at the University of Queensland. As part of the work for one of his papers he has been going into industry to interview people and after one day he received a call from a company that said they had an internship going and they thought Samuel should apply if he was interested. He was not looking for work but the sound of it was something that really interested him. The date of application closure was the day they called him. He furiously filled the application and sent off his CV (which for someone with his executive function issues is huge to get himself into gear and organised to do this!) and was then called for an interview with 40 other applicants and he being the only homeschooler. He went for the interview and felt that it had gone well but was up against some other very talented young programmers. However, he got a call last week and was told that he was wanted for a second round of interviews. The interview happened on Tuesday and he was called last night offering him the internship!! Tears of joy from this proud Mama! He will be going in one day per week paid and taught all that they can teach him and then at the end of his degree has the offer of a full time position. My out of control (to others!) boy diagnosed with ADHD/ASD/ODD/Gifted and with learning difficulties (namely dyslexia and severe dysgraphia) who was suspended from every single school bar one (and he went to quite a few schools), who we were told needed serious psychiatric help by one school principal and who left the school system crushed, depressed and with little to no self esteem has just proved them all how wrong they were about him! I always knew that they were wrong but he didn't! He came home and was allowed to be the wonderful, smart human being that he is and always was. It was just that school didn't always see that and tried to "fix" him when he was never broken! To all those parents who worry about their children - please have faith. I know sometimes it is a huge leap of faith but Samuel was allowed to follow his passions and do things HIS way and I am so very proud of the young man he has become and his achievements today. He has proved to me that you don't need others to teach you, tell you what you need to or should be learning. Having a passion, interest or aptitude in something and being allowed to follow it really does work - well it has for my family anyway and I am sure it will for most heart emoticon
I am a life learning Mama and this page is where I like to share things that resonate with me in some way along this wonderful life journey we are on ♥
Showing posts with label ADHD. Show all posts
Showing posts with label ADHD. Show all posts
Monday, 6 April 2015
Sunday, 22 February 2015
We need to be who we are...
Every time I read this story I feel emotional. It resonates with me so much. I was that child and I too wish someone had intervened. I am so glad that I have been able to intervene for my children and let them fly with the things they want to fly with. Let them follow their passions and be in their "element". That for me is what school crushed. I am sorry if some people think that I go on about this too much but I feel so passionate about it! We all have our gifts, likes, passions, interests or whatever else you wish to call them. Maybe if schools focussed on allowing children to follow them we would have a lot less disaffected kids with low self esteems coming out of the education system. I do not make this stuff up. It is real for many, many children and I know lots of these kids and their families and hear their frustrations and hurt. I only have to read the huge number of stories in support groups to do with children diagnosed with ADHD, ASD, Gifted, Dyslexia (the list goes on!) to know that school for many is just not working. Diagnosis or not many of these children are struggling in the system and feeling like failures when maybe all they need is to be allowed to shine in whatever it is that lights their fire. Many of them would not need these lables either. They just are who they are and if allowed to be just that there often are no problems. My son was one of these kids. In so much trouble at school. Meeting after meeting, specialist after specialist to "fix him" when he was never broken. Just misunderstood and caged. Unschooling for him was a lifeline. He got to follow his passion which was computers and programming. At the age of 19 he is in his final year of a software engineering degree and happy. School did not get him there. He got himself there.....
Gillian was only eight years old, but her future was already at risk. Her schoolwork was a disaster, at least as far as her teachers were concerned. She turned in assignments late, her handwriting was terrible, and she tested poorly. Not only that, she was a disruption to the entire class, one minute fidgeting noisily, the next staring out of the window, forcing the teacher to stop the class to pull Gillian’s attention back, and the next doing something to disturb the other children around her. Gillian wasn’t particularly concerned about any of this – she was used to being corrected by authority figures and didn’t really see herself as a difficult child – but the school was very concerned. This came to a head when the school wrote to her parents.The school thought Gillian had a learning disorder of some sort and that it might be more appropriate for her to be in a school for children with special needs. All of this took place in the 1930’s. I think now they’d say she had attention deficit hyperactivity disorder, and they’d put her on Ritalin or something similar. But the ADHD epidemic hand’t been invented at the time. It wasn’t an available condition. People didn’t know they could have that and had to get by without it.Gillian’s parents received the letter from the school with great concern and sprang to action. Gillian’s mother put her daughter in her best dress and shoes, tied her hair in ponytails, and took her to a psychologist for assessment, fearing the worst.Gillian told me that she remembers being invited into a large oak-panelled room with leather-bound books on the shelves. Standing in the room next to a large desk was an imposing man in a tweed jacket. He took Gillian to the far end of the room and sat her down on a huge leather sofa. Gillian’s feet didn’t quite touch the floor, and the setting made her wary. Nervous about the impression she would make, she sat on her hands so that she wouldn’t fidget.The psychologist went back to this desk, and for the next twenty minutes, he asked Gillian’s mother about the difficulties Gillian was having at school and the problems the school said she was causing. While he didn’t direct any of his questions at Gillian, he watched her carefully the entire time. This made Gillian extremely uneasy and confused. Even at this tender age, she knew that this man would have a significant role in her life. She knew what it meant to attend a “special school”, and she didn’t want anything to do with that. She genuinely didn’t feel that she had any real problems, but everyone else seemed to believe that she did. Given the way her mother answered the questions, it was possible that even she felt this way.Maybe, Gillian thought, they were right.Eventually, Gillian’s mother and the psychologist stopped talking. The man rose from his desk, walked to the sofa, and sat next to the little girl.“Gillian, you’ve been very patient, and I thank you for that”, he said. “But I’m afraid you’ll have to be patient for a little longer. I need to speak to your mother privately now. We’re going to go out of the room for a few minutes. Don’t worry; we won’t be very long”.Gillian nodded apprehensively, and the two adults left her sitting there on her own. But as he was leaving the room, the psychologist leaned across his desk and turned on the radio.As soon as they were in the corridor outside the room, the doctor said to Gillian’s mother, “Just stand here for a moment, and watch what she does”. There was a window into the room, and they stood to one side of it, where Gillian couldn’t see them. Nearly immediately, Gillian was on her feet, moving around the room to the music. The two adults stood watching quietly for a few minutes, transfixed by the girl’s grace. Anyone would have noticed there was something natural – even primal – about Gillian’s movements. Just as they would have surely caught the expression of utter pleasure on her face.At last, the psychologist turned to Gillian’s mother and said, “You know, Mrs. Lynne, Gillian isn’t sick. She’s a dancer. Take her to a dance school”.I asked Gillian what happened then. She said her mother did exactly what the psychologist suggested. “I can’t tell you how wonderful it was”, she told me. “I walked into this room, and it was full of people like me. People who couldn’t sit still. People who had to move to think“.She started going to the dance school every week, and she practiced at home every day. Eventually, she auditioned for the Royal Ballet School in London, and they accepted her. She went on to join the Royal Ballet Company itself, becoming a soloist and performing all over the world. When that part of her career ended, she formed her own musical theatre company and produced a series of highly successful shows in London and New York. Eventually, she met Andrew Lloyd Webber and created with him some of the most successful musical theatre productions in history, including Cats and The Phantom of the Opera.Little Gillian, the girl with the high-risk future, became known to the world as Gillian Lynne, one of the most accomplished choreographers of our time, someone who has brought pleasure to millions and earned millions of dollars. This happened because someone looked deep into her eyes – someone who had seen children like her before and knew how to read the signs.Someone else might have put her on medication and told her to calm down. But Gillian wasn’t a problem child. She didn’t need to go away to a special school.She just needed to be who she really was.
From the book “The Element – How finding your passion changes everything” by Ken Robinson
Labels:
ADHD,
ASD,
Dyslexia,
Element,
Gifted,
Homeschooling,
Passion,
Unschooling
Saturday, 21 February 2015
Over prescribing medication to children
A little while back I posted an article on my Facebook page about the over prescribing of prescription medication for children. Not just any
medication but anti-psychotic. I shared with a comment about how very sad I was
to read the figures and how wrong I felt it was. 100,000 scripts for children
alone in Australia seem astonishingly high and I question whether all children
prescribed these meds actually need them. I have been in the
ADHD/ASD/Gifted/Specific Learning Difficulty arena for over 20 years now and
have done much reading and research around this topic. I was married to a man
diagnosed with ADHD, I have a nearly 20 year old diagnosed with
ADHD/ASD/Gifted and with specific learning differences, namely dysgraphia
and dyslexia (a lot of unnecessary labels me thinks and one has to beg the
question why?! - but hey that is whole other discussion!) I have also taught in
schools where children have similar diagnosis (or not) but are medicated and I
have formed some strong views on it. They are merely my views woven from the journey
I have been on to find me where I am now with my thoughts on all this and that
being that there are far too many children being prescribed strong medications,
with little research into the long term effects on the developing brain and
those said same medications often having some quite extreme side effects that I
have heard about through friends and from my own observations whilst teaching. I chose not to medicate my son after doing
extensive research, soul searching and discussion with him over the years. I
loved my son as he was. As a child he shone to me like a beam of light, always
happy, fun loving and kind. What were his issues? He had bucket loads of energy
(some like to say hyperactive), he did things his way, questioned authority
when he did not see a reason for something and questioned most things in life
and the universe from how milk got from a cow to how a wheel turned to how one
might travel in time - insatiable and never ending his quest for knowledge. His
brain was a dynamo, always exploring and enthusiastic about everything! Why
would I mess with that? He was 3 or 4 when he was first diagnosed with ADHD. He had stood out as being different from when
he started at nursery when he was 2 and I as a single Mum went to University to
study for my degree. I was often called
in for "chats" about my sunny boy. They did not always have the same
upbeat view of my son that I had. They
found him hard work. So hey why not medicate him? The interview where this
decision was made took about 1/2 hour where I had to fill some questionnaires,
(as did the nursery he was in at the University I was studying at) and they had
a chat with me. They diagnosed him with ADHD (after hearing that his Father was
diagnosed with ADHD as a child and was on Ritalin until the age of 16). I
accepted the diagnosis but I rejected the need for medication. It actually
filled me with horror. Why would I give me beautiful perfect child an amphetamine
(with similar effects on the brain as speed and cocaine?) He was 3!! The
response to my decision from the psychiatrist was that what I was doing was
"an indirect form of child abuse as I was not offering my son the window
of opportunity to realise his full potential" Wow! What a burden to put on
a Mother's shoulders and on my shoulders it fully sat as I had no support being
a single Mum and little family support as my Mother had died the year before
the birth of my son. There were no support networks like there are now. No forums. No Facebook. Nothing. I cried an ocean of tears and toiled with what
they had told me but my instinct was to say no to drugs. So I did. We continued
on enjoying our life but with many phone calls from nursery, child care or whoever
was looking after Samuel for me - mostly telling me what he had done wrong and
how they could no longer look after him. It was a very stressful time for me
and I questioned my decision often but that deep instinctual protective
maternal force kept me on the path I had chosen for us. I have never said no to
medication as I know it can help some children immensely but I felt for us
there were other things I wanted to try. I looked at his diet and eliminated
all artificial additives, natural siliciates and basically did an elimination
diet where you take the diet back to basics and slowly introduce foods back in
to see if there are any side effects from those foods. Food definitely did affect
him but it was not a miracle cure. I also took him to a naturopath and we also
added some vitamins, omega 3, minerals and they too helped but again it was not
a "cure". And I say "cure" because that was often the word
used about my beautiful boy. I started to question this and ask what was it
they wanted to cure? An insatiable
curiosity and need for answers, a busy body that needed to move to learn, a self-motivated
investigator who did not want to sit and do what others expected of him but
wanted to seek out his own interests (and yes this was evident from the get go
- which I think is the same for all children but maybe those with these
diagnosis are a little more extreme in their behaviours). I loved being with Samuel and he lit up my
world. The heavy load came from others views and expectations of him and I was unwilling
to medicate to appease them.
I had other reservations for the
use of medication. I had been married to a man who was diagnosed with ADHD. I
had not even heard of this condition until I met him. He was exciting,
vivacious, interesting, fun, kind and thoughtful and I loved him very much.
However, amongst the good, there was a darker side. He had a problem with
drugs. When we first met it was only marihuana but then things seemed to spiral
and once he had moved to the UK from Australia (where we had me) his drug problem
had grown to include heavy use of ecstasy, speed and cocaine (amongst other
things that I dared not know). His life crumbled. We were very young and his
problem was out of control. My beautiful Mum had been diagnosed with cancer and
neither of us particularly coped with the stress from that. He became erratic
and violent and we were known to the police and a number of restraining orders
were put in place after I had been the victim of domestic violence on a number
of occasions. Our lives were crazy and completely dysfunctional. I was mourning
the death of my Mother and he was dealing with his unresolved childhood issues
of being a kid that was totally misunderstood and self-medicating turning him
into a danger to himself and us. This was a beautiful human being who I saw as
being damaged by a system that deemed he did not "fit". He was
punished for being himself. He was always in trouble in school and spent much
of his time outside the principal's office. He was also medicated with Ritalin.
He said he hated it. He felt a lack of control and he hated the way it made him
feel. Those memories of what he had told me and the tears I had seen him cry
propelled me even more to walk a different path with our son who had been given
the same diagnosis as his Dad. I wanted to rewrite history, not repeat it and
right a wrong for Samuel's Dad, even though he was no longer in our lives
having moved away and us not seeing him ever again from when Samuel was about
3. This was so important to me. His story scared me. He scared me. My son's
diagnosis scared me. I wanted a different story for Samuel, so I chose a
different path and thus began my feelings about the use of medication.
I also met a couple of other Mums
whose children had similar diagnosis and they trialed medication and it was
not the magic cure that so many touted. They had no fewer problems than my son
who was not taking it. I also in time met another child again with a similar
diagnosis and he was on a cocktail of medications and he was actually doing no
better but worse than my son. I saw medication as being something that promised
you the world and let you down over and over again. I also started working at a
school as a teacher aide, working with 5 year olds. I always remember one dark
haired little boy with the palest skin and sad eyes. He had been put on Ritalin
to help bring him out of himself and to focus. What do you want a boy of 5 to
focus on? Sitting at the table struggling to read because he is not ready or
letting him play and play all day until his cheeks become flushed with joy and
his eyes light up? I would choose the later. He would cry to me that he did not
want to go to the office at lunch time for his little white pill. He would cry
to me that they made his head hurt. I so wanted to stop that for him. I wanted
to scream at the school. I wanted to scream at his mother for listening to
those Drs who no doubt made her feel as guilty as they had me by saying that if
she did not give him those little pills she would be offering him no window of
opportunity in his little 5 years of life! What had gone wrong with the world
that we find ourselves in a place that we feel the need to give drugs meant for
grown bodies and brains to babes with precious minds that are still forming? It
was all so hard for me to understand but again cemented my feelings that giving
Samuel no little white pills was the right choice for us. I did not want to see
my boy clutch his head in pain or cry with a complete lack of control over this
decision. The powerlessness of childhood is something I struggle with. That
little boy had no power over his destiny and I felt powerless to help the
little man in my care at school other than to hug him wipe his tears and hear
his feelings, but I could help my own son and I would and I did – drug free. I am not touting this as being the best way
but it was the way for us and in the same way that others don’t like to be made
to feel guilty for medicating their children I don’t want to be made to feel
guilty for choosing not to. My son is 19
now, in his final year of a software engineering degree, has a girlfriend,
part-time job and is a happy human being who likes himself as he is. If the powers that be had had their way he
would have been medicated and I think that where he is now shows that it just
wasn't necessary. So yes, sorry to
those who got angry with me for posting the article that stated those stats and
had the need to justify why medication is the answer for their children but this story is my
reasoning for my big questions on why so many children are being medicated and
most often than not to stay in an education system that cannot cope with
difference. Something is very wrong in
that for me but hey we are all entitled to our own opinions and for the story
of success that I give here about my own son I know there are others that will show how
medication was right for them. Life is never
black and white but many shades of grey and one person’s truth is not the same
as another’s and that is ok but at least try to be open minded and just accept that every opinion is just someone's perspective and their truth and every bit as real as your own..
Labels:
ADHD,
anti-psychotic,
ASD,
drugs,
Gifted,
hyperactive,
Medication,
ODD,
SLD
Saturday, 1 February 2014
Homeschool Support Groups
When people first come to me for
advice about homeschooling I always tell them to join a support group. When my son was little I was very hesitant to
join support groups as I am quite an introvert and going along to meet other
people that I did not know was somewhat daunting and at times depressing. I remember going to one group about ADHD and
I just sat there listening to everyone’s rather sad stories. They did not seem to relate to me or my
situation and I was too shy to really intercept any conversation so I just sat,
listened and waited and then when the time was up I just picked up my coat and
walked out that door not having made one friend, not feeling supported or
understood and certainly not uplifted.
It felt nothing like how I had envisioned a support group! However in the past 15 years things have
changed rapidly with the meteoric rise of the internet. Now you no longer even have to leave your
house if you have access to a computer, smart phone or some other form of
technology that will enable you to access the web. There are so many online support groups now
it can feel a little overwhelming but don’t give up. There are local, national and international –
the choice is yours. I think it is a
good idea to choose a few and just get a feel for them and see whether they
resonate with you. I find most of my
support groups on mediums such as Facebook where there are a heap of closed
groups that give you privacy to be able to speak your mind. When the group is closed it means that only
the members in it can see what you have written and nobody else will have
access to it on your news feed. This
gives benefits to those who seek privacy and don’t wish for everything they
write to be shown to all on their friends list.
If a group is run properly then when people ask to join they will be
screened. It they are not a friend or a
friend of a friend then an admin person should be clarifying with them why they
wish to join the group. This protects
other members as it can be an avenue for opportunists who just want to get into
the group and sell their wares or pedal a business. It will never by 100% full proof but on the
whole the groups can be kept safe and if any rogue person does gain access the
admin can delete them and block them so that they cannot gain access
again. This really is only a problem for
some of the larger groups.
SunnyHomeschool Support Hub that I started on the Sunshine Coast was
intended to support local people who were new to homeschooling and wanted help
with paperwork or other advice on the practicalities of homeschooling and how
you become registered or join a distance education provider. It has however grown into far more than that
and we now have nearly 400 members covering a substantial distance. It has meant a bigger workload and we have
needed to take on more administrators to share the load but it has been
wonderful connecting with other homeschoolers across Queensland, Australia and
some from overseas. We have so much to
learn from each other. The majority of
the activity does however come from locals who interact and arrange meet-ups,
excursions, courses, field trips or whatever else our wonderful online
community can come up with. There are
also many smaller regional groups popping up all the time and it is a great place
to shout out and find if there are other homeschoolers in your local area. It has also been a place to cry, laugh and
share troubles in a non-judgemental arena and nobody has to leave their house
to do so (unless they don’t have the technology to access this kind of
support). If you don’t have it at home
there are always internet cafes and libraries that can assist you. For me the online support groups have been a
lifeline where you can share ideas, success stories, group gatherings,
resources, information of all kinds and offload any concerns that you may be
harbouring and it does not bring the social worries that actually face to face
meetings can bring about for many of us and especially for those on the
spectrum. Even for my son who was very
much unschooled and just did his own thing alone at home (never wanting to go
and meet other homeschoolers), when he decided to access Brisbane School of
Distance Education when he was doing Year 11 and 12, the online community
became such a gift to him where previously he had struggled with friendships in
real life because of some of his differences, online he was accepted. He could be himself and chat with others with
a lot less judgments being made than when he was at school. He could access forums whereby discussion
would take place on subjects he was studying and students could support each
other in a far less threatening way than actual physical meet-ups. A real joy for us was that when he eventually
went to University some of those online friends that he made went with him and
they are still friends today 4 years down the track. That is a real blessing for a boy who grew up
with very few (if any) real friends.
Many of these online groups make
times where they meet up in real life so then if that is important to you it is
available. Not everyone just enjoys
online relationships. Often we use that
time as a park play for our children and the parents will chat and put the
world to rights amongst themselves whilst their children go off and have fun
and make connections or the parents might listen to a speaker on a relevant
topic that may be of interest. It is
such an important part of homeschooling for me and I have found the benefits to
be enormous. Whereby previously when my
son was young and I had no access to support groups I found the journey a lot
more worrying and stressful when all I had was my own head to try and sort out
my worries and nobody else to give advice, suggestions or just a hug or pat on
the back so that I felt I was not alone and was doing ok. As the saying goes a worry shared is a worry
halved and it has certainly been the case for me. Although I like lots of my own time, meeting
up with others occasionally to give and receive support has become an important
part of my homeschool journey.
Support groups do not come
without their downsides as I have learned along the way. A whole group of people coming from differing
walks of life, with different life experiences, expectations and needs is
always a place where sometimes conflict can occur and especially within our ASD
community where sometimes quirky behaviour is on display. I try to be very accepting of others and
although I agree that we don’t all have to share the same ideals, educational
philosophies or parenting styles I do feel for the harmony of the group we have
to agree to differ on some points and be respectful of each other when that
does occur and accept that all of us come to where we are with our own stories
and that is ok. There is no right or
wrong way to homeschool, parent nor live, just the right way for you and your
family and none of us have the right to pass judgement. I feel that we more than others need to be aware
of difference and be inclusive and accepting.
Many of the families that I meet have left school after experiencing
harrowing times and they have been friendless and often rejected as we once
were. It is important to me that any
group that I facilitate is inclusive and shows kindness and compassion to each
other. We often have enough to fight with
when our children have issues that need treatment, therapy and a lot of our
time and energy. We do not then need to then
find conflict within our support groups. That is no support at all. I know it is sometimes hard but it is an
ideal that I try to adhere to as much as I can. Life is too short to invite conflict into our
lives.
I think we also need to be
mindful of the information that we are given within some of the support groups
we go to and take everything in with an open mind. Some people will swear by a resource that has
been the best thing for their child or a system that has worked for them. It may not be the best for you and you don’t
want to be taking on that advice and spending lots of money to set up your
homeschool environment when that is not actually the way that will work for
you. I think we can all start panicking when
listening to other people who seem to have the best way of doing things and all
seems rosy and bright in their world and it can actually make us feel worse
rather than better! When I feel like
that I walk away from those interactions.
I don’t need competition nor to start doubting myself. I find the best support group for me in those
times is the beach! Take what you need
from a group but disband with what you don’t.
I have learned that along the way too.
Also we don’t need to be friends with everyone. That is not possible but at least make all the
interactions you do have kind ones and don’t exclude people. You never know how much of a difference your
support one day can make to a person in need even if in your heart you really
don’t feel a connection with that person we can all be kind.
Some other support groups offer
practical help such as learning co-ops where resources are shared as well as
parental skills. These can be great if
your child wants to learn a particular skill and you are not able to teach them
yourself or pay for someone else to do so. Pooling resources and skills is a wonderful
way to connect with other homeschoolers and learn along the way. Even giving each other some time away from
the children can be of support to many especially if you have a high need child
or children. A reciprocal child-minding
circle if your child is open to that and they don’t mind spending some time
away from you can be great. There are so
many different ways to give and receive support. Everyone needs a helping hand at some point
in their life and we can all offer each other so much if we just reach
out. Happy homeschooling everyone J
Some good homeschooling support
groups to start with are:-
Homeschool Australia at www.homeschoolaustralia.com
Unschool Australia at www.unschoolaustralia.com
SunnyHomeschool Support Hub at
Monday, 19 August 2013
Saturday, 2 July 2011
Parenting a child with 'Special Needs'
Not sure I like the term “special needs” but I use it. What does it mean? Having a quick check on Wikipedia it depends on where you live in its definition! However, the country I like best in its interpretation is Germany where special needs children are called “besondere kinder” (“special children”). I like this term best – if I bother to check every country’s definition I may find something better, but for me now this sounds right. I know all children are “special” but for some of us parents the term has a real depth of meaning that perhaps others have not experienced? I have two beautiful children, one of which is diagnosed with ADHD/Aspergers with Dysgraphia and is Gifted! Yes he is truly VERY special. In fact he is one of the most amazing people in my life. In his 15 years of life he has struggled against a system that does not always recognise difference. He inspires me, constantly challenges me in both good and bad ways and is one of the kindest kids I know! If you let me, I would like to share some of our special journey.
He was born on a beautiful sunlit morning. I remember this little bundle of newness being handed to me swaddled in a blanket opening one wise eye and checking me out. What did this cute man’s future hold? My imaginings for our journey together were not really in tune with the reality as it turned out! He was a gorgeously cute baby (as they all are!) and made everyone smile. However, from a young age I knew that something was different about him. It was always his name I heard being called – called away from mischief mostly – not an intentional mischief – it just seemed to search him out! If he could find a way of doing something differently he would. If everyone was going left, he would be going right. If they were going up, he would be going down! He could get away with it whilst he was tiny but then once past being a toddler it became a diagnosed problem. Phone calls from day care, after school clubs, swim squad, holiday programmes – you name it – they would usually call me and tell me of some sort of problem they were having with him. It is not something that I would wish on any Mother. You want to be told good things about your child. You want your child to be liked. You want your child to be invited to birthday parties, play dates and other social gatherings. It hurts to hear the whispers, the judgmental looks. I always vowed that I would speak out for these kids when mine grew up. My son is growing up and doing well now. I did not always think this would be the case! It has taken a lot of hard work, commitment and a thick skin (of which I have very little!). The journey has at times been painful and I have cried many tears. However, I want parents to know that if your child is indeed “special” like mine there is light at the end of the tunnel if you work at it.
Don’t read all the doom and gloom books (or which there are many!) Don’t listen to every specialist without questioning their advice. I have often gone against the grain with the treatment of my son’s disabilities and trusted my mothering instinct. We do not take medication. I wanted my son to know himself as he is, not a medicated version. I wanted him to learn strategies to manage his behaviours. We have looked at diet. We do not do artificial additives. It helps! We drink plenty of water and get adequate sleep. It helps! We talk and discuss things, we share ideas and try to work as a team. Some say parents should not be their child’s friend. I am. It helps (or it has for me!).
I am so proud of my son and what he has achieved in spite of his disabilities. He is an avid Surf Lifesaver serving our local community. He is known in our neighbourhood for being a kid that will help someone in need, especially the sick and the elderly. Without doubt he is “special”. I hope that this blog gives strength to other Mothers who may sometimes feel so alone living with a child who is different. I have been abused and bullied because of my son’s differences. No Mother should have to endure that. Believe in yourself and your child and you too will see the light and when you do I hope that it shines as bright as the light I see now. Blessings to our “besondere kinder”
Home Schooling a 2e Child
Home schooling a child with ADHD/Aspergers/Twice Exceptional (wow what a label!!!!)
I have been asked many times what it is like to home school my son who was diagnosed age three with ADHD and then having started school got a few more labels added namely Aspergers with a mix of Giftedness, together with a learning disability, known as Dysgraphia and all combined together makes for a beautiful but somewhat challenging young man.
I began my home school journey around six years ago when my son having been stood down from most schools (including the one at which I taught) began attending an alternative school in Auckland, that catered for children that were somewhat outside of the ‘norm’. This was a disaster and Samuel became depressed after countless episodes of bullying. My son is a very upbeat person and I really could not stand by and watch his whole personality change before my eyes and all in the name of gaining an education. Henceforth I took a deep breath, argued my case with my husband and decided to bale out of the traditional system and try ‘school at home’.
I was nervous about my decision and really wondered whether I was up to something so ‘different’. I had never questioned school really and certainly had no experience with home schooling, nor knew of an other people home schooling. However, one of the first things I did was reach out and find my local home school community and I really began to tap into what they had to offer. It was not always successful as even within that environment Samuel stood out as different, but it did give me a reference point and somewhere to turn to when I needed help.
At home, to begin with, we really did very little (unschooled), to give ourselves a breather from the stress that had amounted for us both due to what had happened at school. It was a wonderful time where we enjoyed each other’s company, relaxed and planed our way forward. I had trained as a teacher the year before I decided to home school, which is funny because it really fired my enthusiasm for leaving the system! I saw how difficult it was to cater for children who do have extra needs, whatever they may be and it gave me the passion to make a difference for at least one child who struggled against the grain, namely my son.
Another benefit for being a ‘qualified’ teacher it gave me some kudos when people asked why Samuel was not at school. I would tell them he was ‘home schooled’ and that I was a trained teacher and they seemed to accept this as better than if I was not! The fact is ANYONE can home school and my training had no benefits to me other than enabling me to see school both from the perspective of a teacher and as a Mum with a child that has ‘special needs’.
Once we had settled more with our decision to home school and accepted this next stage in our ‘educational’ journey Samuel and I decided that a topic based approach would be best. I initially started by running our day very like school with lessons in 45 minute blocks. This really did not work for us and neither was it necessary. Children with ADHD often lack focus and are easily distracted so I found it good to have a quite space for Samuel where he was relaxed but without constant interruption or unnecessary distractions. We compiled a little timetable to help with his organisation, which he really struggles with, but flexibility within that was the best for both of us. Samuel often hyper focuses (another characteristic of both ADHD and Aspergers) and rather seeing that as a deficit we let it work to our advantage. If Samuel was really fired up about a subject and wanted to work on it all day then that was fine. It was amazing how much he covered in a few hours without all the constant interruptions. I also found that when Samuel chose his topic it gave him ownership that also fuelled his motivation, which is not always there with these children. He is a bright child who thrived on this and rather than relying on a teacher for the answers he really wanted to just problem solve and work it out for himself.
Another benefit we found was that where at school he had been conscious of his inability to write and was embarrassed by it because of remarks by other children, at home he had none of this pressure. We did not focus on writing and indeed I helped to teach Samuel to type and would also get him to use a dictaphone to transcribe his stories which I would then type for him. When he was at school he spent many lunchtimes kept in to write up what he could not do during the lesson. The fact is Samuel will never be good at writing in the traditional sense however many ‘remedial’ lessons he receives so we decided to focus on his strengths and build up his self esteem again.
He has exceptional abilities in maths and computing and I felt unskilled in those areas so we decided to tap into distance education where he was able to do papers at his level, which was above his chronological age. He loved this time and built up a rapport with his distant education teachers that did not really materialise at mainstream school. Mainstream school teachers judged Samuel on some of the more challenging behavioural aspects of his condition rather than on the ‘whole’ person. Samuel at home talking online was not judged and neither did many of those ‘behavioural issues’ surface when he was working in a more relaxed, unpressured environment.
We have carried on in this way over the years until recently when Samuel decided that he wanted to do Software Engineering at University. We approached the local University and made enquiries as to how he could get in without the traditional qualifications. On research for us we found the best way for Samuel would be to enrol in Distant Education full time and he is now doing his OP subjects. He has been accelerated a year and is also attending University one day a week which he is loving. He is now 15 and for me looking back over the years I am amazed at how far he has come. I at times worried so much for his future because I was made to worry. Since Samuel has been home schooled we have really dropped many of the ‘labels’ that seemed to be so necessary for him during his time in mainstream. We have no need for labels at home. He is just Samuel. He no longer goes to all the ‘specialists’ he used to, who tried to ‘fix’ him. I am no longer made to feel guilty because I choose not to medicate him. I have found home schooling to be the best thing that we have ever done and for anyone who has a child with ‘special needs’ it can be so rewarding. I have really seen a blossoming in my child and I hope that my story may help, inspire or encourage others to take that initial step for a better future for our children who march to a different beat. J
I have been asked many times what it is like to home school my son who was diagnosed age three with ADHD and then having started school got a few more labels added namely Aspergers with a mix of Giftedness, together with a learning disability, known as Dysgraphia and all combined together makes for a beautiful but somewhat challenging young man.
I began my home school journey around six years ago when my son having been stood down from most schools (including the one at which I taught) began attending an alternative school in Auckland, that catered for children that were somewhat outside of the ‘norm’. This was a disaster and Samuel became depressed after countless episodes of bullying. My son is a very upbeat person and I really could not stand by and watch his whole personality change before my eyes and all in the name of gaining an education. Henceforth I took a deep breath, argued my case with my husband and decided to bale out of the traditional system and try ‘school at home’.
I was nervous about my decision and really wondered whether I was up to something so ‘different’. I had never questioned school really and certainly had no experience with home schooling, nor knew of an other people home schooling. However, one of the first things I did was reach out and find my local home school community and I really began to tap into what they had to offer. It was not always successful as even within that environment Samuel stood out as different, but it did give me a reference point and somewhere to turn to when I needed help.
At home, to begin with, we really did very little (unschooled), to give ourselves a breather from the stress that had amounted for us both due to what had happened at school. It was a wonderful time where we enjoyed each other’s company, relaxed and planed our way forward. I had trained as a teacher the year before I decided to home school, which is funny because it really fired my enthusiasm for leaving the system! I saw how difficult it was to cater for children who do have extra needs, whatever they may be and it gave me the passion to make a difference for at least one child who struggled against the grain, namely my son.
Another benefit for being a ‘qualified’ teacher it gave me some kudos when people asked why Samuel was not at school. I would tell them he was ‘home schooled’ and that I was a trained teacher and they seemed to accept this as better than if I was not! The fact is ANYONE can home school and my training had no benefits to me other than enabling me to see school both from the perspective of a teacher and as a Mum with a child that has ‘special needs’.
Once we had settled more with our decision to home school and accepted this next stage in our ‘educational’ journey Samuel and I decided that a topic based approach would be best. I initially started by running our day very like school with lessons in 45 minute blocks. This really did not work for us and neither was it necessary. Children with ADHD often lack focus and are easily distracted so I found it good to have a quite space for Samuel where he was relaxed but without constant interruption or unnecessary distractions. We compiled a little timetable to help with his organisation, which he really struggles with, but flexibility within that was the best for both of us. Samuel often hyper focuses (another characteristic of both ADHD and Aspergers) and rather seeing that as a deficit we let it work to our advantage. If Samuel was really fired up about a subject and wanted to work on it all day then that was fine. It was amazing how much he covered in a few hours without all the constant interruptions. I also found that when Samuel chose his topic it gave him ownership that also fuelled his motivation, which is not always there with these children. He is a bright child who thrived on this and rather than relying on a teacher for the answers he really wanted to just problem solve and work it out for himself.
Another benefit we found was that where at school he had been conscious of his inability to write and was embarrassed by it because of remarks by other children, at home he had none of this pressure. We did not focus on writing and indeed I helped to teach Samuel to type and would also get him to use a dictaphone to transcribe his stories which I would then type for him. When he was at school he spent many lunchtimes kept in to write up what he could not do during the lesson. The fact is Samuel will never be good at writing in the traditional sense however many ‘remedial’ lessons he receives so we decided to focus on his strengths and build up his self esteem again.
He has exceptional abilities in maths and computing and I felt unskilled in those areas so we decided to tap into distance education where he was able to do papers at his level, which was above his chronological age. He loved this time and built up a rapport with his distant education teachers that did not really materialise at mainstream school. Mainstream school teachers judged Samuel on some of the more challenging behavioural aspects of his condition rather than on the ‘whole’ person. Samuel at home talking online was not judged and neither did many of those ‘behavioural issues’ surface when he was working in a more relaxed, unpressured environment.
We have carried on in this way over the years until recently when Samuel decided that he wanted to do Software Engineering at University. We approached the local University and made enquiries as to how he could get in without the traditional qualifications. On research for us we found the best way for Samuel would be to enrol in Distant Education full time and he is now doing his OP subjects. He has been accelerated a year and is also attending University one day a week which he is loving. He is now 15 and for me looking back over the years I am amazed at how far he has come. I at times worried so much for his future because I was made to worry. Since Samuel has been home schooled we have really dropped many of the ‘labels’ that seemed to be so necessary for him during his time in mainstream. We have no need for labels at home. He is just Samuel. He no longer goes to all the ‘specialists’ he used to, who tried to ‘fix’ him. I am no longer made to feel guilty because I choose not to medicate him. I have found home schooling to be the best thing that we have ever done and for anyone who has a child with ‘special needs’ it can be so rewarding. I have really seen a blossoming in my child and I hope that my story may help, inspire or encourage others to take that initial step for a better future for our children who march to a different beat. J
Our Journey without Drugs
I was told by a ‘specialist’ when I refused to give my son Ritalin that what I was doing was an “indirect form of child abuse as I was not offering him the window of opportunity to realise his full potential”. He was 3 years old. Yes, he was getting into trouble, yes he was a handful, yes he could be challenging! However, I stuck to my guns and at the age of 15 he now attends University one day a week and goes full time next year studying Software Engineering. I kind of think he is realising his potential drug free! Drugs are not always the only answer, if the answer at all for some.
Things were hard at times and it has not always been an easy journey. I am proud of my son and what he has achieved. He knows himself as he is – not a drugged version – and is doing well in all areas of his life and he is my friend as well as my son. He is diagnosed with ADHD/Aspergers and is Gifted but also has learning difficulties, namely dysgraphia. We have worked together to find solutions to problems without the use of drugs and I really had to fight hard to convince Drs, schools and the so called ‘specialists’ of whom we have seen many, that I felt my way was best. It is only now that I really know for sure that my way was the best for us and I am so proud of what we have achieved and that I stayed strong against those who tried to convince me otherwise. I hope that speaking out gives other parents the strength to follow their heart when sometimes it feels like you are really alone in your decisions. It may not always be the easiest of paths, but for us it was the right one and I hope that speaking out will encourage others to follow a similar path to our own.
On reflecting on why so many children seem to be given medication for conditions such as my sons, I cannot help but wonder if our children just need more of our time but unfortunately in this time poor age it is often somewhat lacking. I am not saying that medication does not have a place for some, but I think they are all too often given out without having tried any other interventions. Again a ‘time poor’ solution – drugs are a quick fix but do nothing for the underlying issues! My son is living proof that there are alternatives that are far better for both body and mind! It was often a lot of hard work and believe me when he was younger, I questioned my decision not to medicate at various times along our journey. Children with these conditions can be utterly exhausting. However, it is something I believed in and I am happy with my decision. I think we always need to support each other whatever our decisions and also find what works best for each individual case. I just like to get the word out that drugs are not always the answer and wish everyone the best whatever path they choose :0)
Things were hard at times and it has not always been an easy journey. I am proud of my son and what he has achieved. He knows himself as he is – not a drugged version – and is doing well in all areas of his life and he is my friend as well as my son. He is diagnosed with ADHD/Aspergers and is Gifted but also has learning difficulties, namely dysgraphia. We have worked together to find solutions to problems without the use of drugs and I really had to fight hard to convince Drs, schools and the so called ‘specialists’ of whom we have seen many, that I felt my way was best. It is only now that I really know for sure that my way was the best for us and I am so proud of what we have achieved and that I stayed strong against those who tried to convince me otherwise. I hope that speaking out gives other parents the strength to follow their heart when sometimes it feels like you are really alone in your decisions. It may not always be the easiest of paths, but for us it was the right one and I hope that speaking out will encourage others to follow a similar path to our own.
On reflecting on why so many children seem to be given medication for conditions such as my sons, I cannot help but wonder if our children just need more of our time but unfortunately in this time poor age it is often somewhat lacking. I am not saying that medication does not have a place for some, but I think they are all too often given out without having tried any other interventions. Again a ‘time poor’ solution – drugs are a quick fix but do nothing for the underlying issues! My son is living proof that there are alternatives that are far better for both body and mind! It was often a lot of hard work and believe me when he was younger, I questioned my decision not to medicate at various times along our journey. Children with these conditions can be utterly exhausting. However, it is something I believed in and I am happy with my decision. I think we always need to support each other whatever our decisions and also find what works best for each individual case. I just like to get the word out that drugs are not always the answer and wish everyone the best whatever path they choose :0)
Homeschooling Volunteer Lifesaver
Both my son and I are volunteer Surf Lifesavers at our local Surf Club. I never in a million years thought I would ever do this (and certainly not having emigrated from a country town in the UK where I had never seen the surf let alone needed to be shown how to use a shark alarm!). However my son decided on arrival to the Sunshine Coast that he really wanted to join up. I remember accompanying him to the beach and jumping around in panic as I saw him being swept at a rather swift pace in a rip and wondering what I should do. He was smiling, having fun and no one in the club seemed remotely concerned – only me – his mother! I later learned exactly what a ‘rip’ was and that they were very useful to get out the back of the waves quickly, which in my son’s case is paramount not only if he needs to do a rescue, but also because he now competes at both State and National level.
Recently he has just returned from the Aussies having been awarded a Bronze Medal working as part of a team. I mention this as I am immensely proud as my son is diagnosed with ADHD and Aspergers. Working as part of a team is not something he has ever particularly excelled at. However our local Surf Club has offered him many opportunities to learn about working as a team and getting along in a group which is an essential skill within this field and indeed life in general. Most beach rescues are a team effort and it is wonderful to see young children and teens honing these skills which will always be useful in later life.
It has also given us opportunities to mix with others and meet people from all walks of life. The teenagers that he associates with in my mind are just inspiring as are the younger Nippers. They have caring attitudes and learn amazing life skills. My son at the age of 15 has not only gained his SRC, Surf Bronze but also his ARC/Defib qualifications, his Senior First Aid, IRB Crew certificate and is a very active member of the club. He attends as many patrols as he can and has for the past two years been awarded for the outstanding number of hours he has put in at the beach helping to keep people safe.
Because of his found passion in the surf it enticed myself to do my Surf Bronze which is no mean feat as at the age of 42 I had never set foot in the surf, let alone paddled a rescue board!!! I managed to pass my Bronze Medallion and it has given me so much respect for both our paid and volunteer Surf Lifesavers who put their lives at risk to save others every year. I attend a voluntary patrol once a month and have really enjoyed getting to know a lot more about the fabulous volunteer Surf Lifesavers that patrol our beaches across the whole of Australia. These clubs are completely run by volunteers and without these selfless people they would not exist. They attend patrols on all the major public holidays including Christmas Day and all in our club do so with pride and a smile on their face. We may have opted out of the school system for a variety of reasons, but we have not opted out of community life altogether!
Volunteering teaches children many important life skills. Not only does it add that critical element of socialisation, that many people (who don’t homeschool!) seem to worry about, with those of his or her own age, plus those older and younger, it also gives many more specific skills as I have highlighted above. Many positive personality traits like persistence, commitment, and the ability to work in a team are learned in a volunteer environment.
Volunteer experience can also be immensely helpful when it comes time to apply for college, university or a job. Depending on your method of homeschooling, and whether or not your child has sat any formal exams, you may have trouble applying for college in the traditional way. Having an impressive portfolio of volunteer experiences will benefit your child and help him or her stand out from the crowd in another positive way.
Volunteering is a fantastic way to take advantage of the freedom that comes with homeschooling while giving back to the community and helping your child learn important life skills. It provides an amazing sense of charitable giving and selflessness that I feel can only be viewed as a good thing. Happy volunteering everyone!
Recently he has just returned from the Aussies having been awarded a Bronze Medal working as part of a team. I mention this as I am immensely proud as my son is diagnosed with ADHD and Aspergers. Working as part of a team is not something he has ever particularly excelled at. However our local Surf Club has offered him many opportunities to learn about working as a team and getting along in a group which is an essential skill within this field and indeed life in general. Most beach rescues are a team effort and it is wonderful to see young children and teens honing these skills which will always be useful in later life.
It has also given us opportunities to mix with others and meet people from all walks of life. The teenagers that he associates with in my mind are just inspiring as are the younger Nippers. They have caring attitudes and learn amazing life skills. My son at the age of 15 has not only gained his SRC, Surf Bronze but also his ARC/Defib qualifications, his Senior First Aid, IRB Crew certificate and is a very active member of the club. He attends as many patrols as he can and has for the past two years been awarded for the outstanding number of hours he has put in at the beach helping to keep people safe.
Because of his found passion in the surf it enticed myself to do my Surf Bronze which is no mean feat as at the age of 42 I had never set foot in the surf, let alone paddled a rescue board!!! I managed to pass my Bronze Medallion and it has given me so much respect for both our paid and volunteer Surf Lifesavers who put their lives at risk to save others every year. I attend a voluntary patrol once a month and have really enjoyed getting to know a lot more about the fabulous volunteer Surf Lifesavers that patrol our beaches across the whole of Australia. These clubs are completely run by volunteers and without these selfless people they would not exist. They attend patrols on all the major public holidays including Christmas Day and all in our club do so with pride and a smile on their face. We may have opted out of the school system for a variety of reasons, but we have not opted out of community life altogether!
Volunteering teaches children many important life skills. Not only does it add that critical element of socialisation, that many people (who don’t homeschool!) seem to worry about, with those of his or her own age, plus those older and younger, it also gives many more specific skills as I have highlighted above. Many positive personality traits like persistence, commitment, and the ability to work in a team are learned in a volunteer environment.
Volunteer experience can also be immensely helpful when it comes time to apply for college, university or a job. Depending on your method of homeschooling, and whether or not your child has sat any formal exams, you may have trouble applying for college in the traditional way. Having an impressive portfolio of volunteer experiences will benefit your child and help him or her stand out from the crowd in another positive way.
Volunteering is a fantastic way to take advantage of the freedom that comes with homeschooling while giving back to the community and helping your child learn important life skills. It provides an amazing sense of charitable giving and selflessness that I feel can only be viewed as a good thing. Happy volunteering everyone!
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